Scottish ADHD Coalition. In other words, roughly 3% to 4% of all adults have ADHD. In truth, not all of the ADHD services have enough funding to meet the NICE Guidelines. To view ADHD as valid DX seems remarkably lacking in critical thinking.” I’ve kept copies of these tweets. . I apologise for the length of the quotes. Almost every complaint treated is treated for the whole of the patient’s life, but sometimes they’ll believe the age thing with ADHD. But you are the gatekeeper to those specialists. Sadly, we have some doubts as to whether the Framework has been amended as Lucy Johnstone and her fellow authors are adamantly opposed to psychiatric diagnoses as illustrated in one of the attached tweets as well as in the following quote from the 3rd paragraph on page 314 of the PTM Framework: At the same time as affirming people’s right to describe their difficulties as they wish, we affirm the equally important principle that professionals, researchers, trainers, lecturers, charities, policy-makers and others involved in the mental health field should use language and concepts that have some claim to be descriptively accurate and evidence-based. CHADD has a nationwide network of Affiliates. During this period, adolescents may also have a greater tendency for risky If you know of a group which is not listed here, please contact us. Researchers for the study of Comorbid Conditions in ADHD (CoCA) at King’s College London are looking for adolescents and young adults aged between 14 to 30 years, who have a current diagnosis of ADHD and are on stable treatment for ADHD (i.e. So we ask the NHS for help, get sign posted to psychological therapies, by the same cheery folk our clan members encountered, and off we shuffle to join the end of a waiting list. Anyone who joins must be respectful of others sexuality, disability, race and gender (including transgender). WHEN: In the Winter and Spring months the group meets on the 2nd & 4th Wednesday of each month. These medications help the patients to stay focused and to take control of their emotion. 1 in 5 adults reported that they had considered taking their own life at some point.”. You know what these idiots are like. It will meet legal duties, NHS Quality Board’s definition of quality (safe, effective, caring, responsive and person-centred), as well as NICE Guidelines & Standards. Last reply by posib17736 on Sun, 17 Jan 2021 11:32:43 +0000, Last reply by thor974 on Sun, 17 Jan 2021 01:18:01 +0000, Last reply by hairbyslice on Sat, 16 Jan 2021 21:05:29 +0000, Last reply by thor974 on Fri, 15 Jan 2021 14:54:28 +0000. On Monday, 14th January 2019, we received an email from the Governance Manager of the British Psychological Society letting us know that a Director of the Society has been appointed to investigate the issues we have raised and that the investigation will take 4 weeks to complete. ADHD Parent Support Group (aimed at parents of secondary ages). And this is where things can go wrong as it has done for BNSSGCCG. ADHD Alliance Ayrshire Support Group: holds monthly meetings for parents /carers who’s child/young person has a diagnosis of ADHD. In fact the people I met were kind, caring and open-minded, and some even had a wicked sense of humour and mischief. I’m afraid we were overly optimistic as progress seems to have stopped so today I sent two emails as follows: I realise that everyone is busy but it has now been 3 weeks since I sent the list of dates for which we are unavailable for a meeting and I have not yet had a reply. After all, shame has been shown to work so well with topics such as addiction and obesity, and, let’s be honest, and the GUM clinics are a disgrace the way they go around treating people for diseases in a non-judgemental way. I acknowledge the difficulties you have. Just the right attention and the right support at the right time. Now a lot of these whiners say they sometimes have trouble remembering to take their medication, which on the face of it looks rather the opposite of addiction. Hi. To contact use form on website http://www.hiddengemsasg.co.uk/contact-us.html, 3. We would also urge BPS and the authors to begin thinking about this quote from page 3: Psychologists should consider it good practice to record their decision processes when confronted with a particularly challenging ethical issue so that it is available for future reference if that decision is re-visited. This is why medical researchers have developed the kind of rules we discussed earlier to try to ensure that the bodily patterns they describe are ‘real’ and not illusory. 1. https://www.facebook.com/groups/adhdsupportiow/, 1. It’s on the BPS website, it has their logo (Tagline: Promoting excellence in psychology) as well as the logo for the Division of Clinical Psychologists. 2. ADHD support group wirral. Pinpoint ADHD/ASD parent support group Huntingdon. Despite the difficulties that ADHD can produce the large majority of groups are run by facilitators that identify themselves as having ADHD, and some do this in partnership with people who do not have ADHD. 1. Here at AADD-UK we avidly followed the news about mental health issues during Mental Health Awareness Week. Actually you know what? Well not exactly. I also saw a tweet from one of the Framework authors in which she stated, “IMO all DX are BS & giving psychoactive meds to kids is immoral. And all this means the PTMFramework carries a backstory of reputability, reliability, and safety. Three times she followed it up and each time was told she’d hear something within two weeks. Drop-in Hours. More information about The Welcome Centre including contact details and map are here: https://www.tlcnetwork.co.uk/contact, 3. together expert clinicians (psychiatrists and neurologists), patient representatives, academics and mental health advocacy groups to explore the reasons why transition of care is currently suboptimal, discuss and agree on the principles for good transition and develop practical recommendations for improving transition to adult mental healthcare services. 2. They just don’t have the gumption or organisation to stick at anything so just keep giving them hoops to jump through. You should say something like: “I feel your pain. The authors’ tone, conveyed through their choice of words and viewpoint, is arrogant and patronising and their negative and disapproving attitude towards ADHD is stigmatising and discriminatory. (3) Treatment as usual – to provide a control group with no additional interventions. . Aided by the illusory correlation, diagnostic categories can then become self-fulfilling prophecies, conferring further credibility as growing numbers of people seem to match them. Instead I decided to leave. An increase in membership has also been observed in the three groups the researcher has had contact with since 2009; the average attendance then was of 11 members per meeting, it is now in 2013 an average of 19 members per meeting with a gender mix of 52% male, 48% female. We are bringing this to your attention as well as the attention of the trustees not only because Lucy Johnstone directed us to the BPS but also because the presence of the BPS Logo on the Framework lends credence and validity to statements which stigmatise people with ADHD. HADD Family Support Group: an organisation in Ireland made up of volunteers- mainly parents of children with ADHD which is dedicated to providing as much up-to-date information, resources and networking opportunities to individuals affected by ADHD and the professionals who serve them. We will be talking with them tomorrow, and they will be investigating the issues around the waiting list. So much unnoticed desperation and despair! Punch them in the face and then tell them they should thank you. (2013). The journey through adolescence into adulthood is a time of significant Access to social care, housing and welfare benefits. Only a psychiatrist can diagnose ADHD so make sure to send patients to anything but a psychiatrist. Furthermore, the Bristol Adult ADHD Support Group met on Friday, 14 February, and it rapidly became apparent that the waiting list (2 years and growing), without any doubt, is putting already distressed people at increased risk of harm. Her children and husband all had (and still have) varying degrees and combinations of ADHD and Autism Spectrum Disorder. 0. Addressing the Balance runs the Central Scotland Adult ADHD Support Group. Services include parenting courses, holiday activities & more, South London (Bromley, Croydon, Kingston upon Thames, Merton, Richmond upon Thames, Sutton, Wandsworth), 1. In other words, if all else fails, just plead ignorance. email@example.com; http://www.addbal.co.uk/home, 1. Do you know if any progress has been made in arranging this meeting with the CCG, [Clinic staff], members of the joint CCG and AWP ADHD Working/Project Group, and [seAp Advocacy]? . Tell them you’ll refer them. You are important, your ADHDolt is not. PACASS (Parents and Carers of people on the Autistic ADHD Spectrum) in Huntingdon. .” [Editor’s note: if you don’t know why this is nonsense, then you, don’t understand ADHD. We are now waiting to hear from all attendees. We will periodically update this page with progress reports. I can confirm the compliments in these lists match the feedback I hear at support group meetings as well as those from my networks. ADHD is a serious neurodevelopmental disorder that can affect about 2-4% of adults. M9 ADHD Parent Support Group, North Manchester. This document is the result of a DCP-funded project for work towards fulfilling this aim. 5. Furthermore, they state that there are no ” consistent associations between functional psychiatric diagnoses [e.g. The authors, of course, as private individuals have the right to their opinions and have the right to publish them under their own names. It’s enough that somebody listened, took us seriously, evaluated patterns underlying our difficulties, and found a way to help us understand. Here is a link to the copy of some tweets we sent to the BPS, Tweets September to 30 November 2018, Here is a link to a list of the statements in the Power Threat Meaning Framework that we sent to the BPS, Quotes from PTMF for Letter, And finally, if anyone is interested in reading more, here is a link to the 414 page version of the Power Threat Meaning Framework: Towards the identification of patterns in emotional distress, unusual experiences and troubled or troubling behaviour, as an alternative to functional psychiatric diagnosis, Thursday, 7th June, We’ve just learnt that it looks as if the Power Threat Meaning Framework has been adopted as policy by the Division of Clinical Psychologists at the British Psychological Society. Tell them how controversial the whole topic is, how expensive the drugs are, that they aren’t trying hard enough (especially on timekeeping – even if your surgery habitually runs late). My reasons for giving you those dull details at the beginning. Susan Dunn Morua on behalf of AADD-UK I returned to reading the Power Threat Meaning Framework. As I wrote at the beginning, we’re preparing to escalate our complaint! I am making enquiries into the matters which you raise and I will be in touch as soon as my enquiries are complete 1. etc.“!!! It shouldn’t be necessary for us to draw the attention of the BPS and the authors to the ethical principles in BPS’ Code of Ethics but since it is, here are two quotes from page 5 they may want to start with: Respect for the dignity of persons and peoples is one of the most fundamental and universal ethical principles across geographical and cultural boundaries, and across professional disciplines. Ask them if they get a buzz off the meds. The poor little darlings, because of their ‘life difficulties’ become sensitive to rejection. It’s been almost 10 years since we set up AADD-UK with hope and optimism. We joined the public Twitter debate & gave this feedback to the lead author as well to @BPSOfficial and @UKDCP. Okay, so you’ve got an ADHDolt that actually managed to stay on topic for more than two sentences, what do you do? Their website also has a list of local support groups. Leicester: British Psychological Society, *Johnstone, L. & Boyle, M. with Cromby, J., Dillon, J., Harper, D., Kinderman, P., Longden, E., Pilgrim, D. & Read, J. 2. 2. Prego! In one list of possible but unlikely side effects is “Behaving With Excessive Cheerfulness And Activity”! Neurodiversity Arts Festival (art, cake & fun in Kingston), UKAAN Announces Publication of ‘Handbook of ADHD in Adults’. ASD/Aspergers/ADHD Support Group Bedfordshire: New support group started for parents of children with ADHD/ASD and Aspergers. ), stand back and for once look at the big picture. Name changed, BTW. Appendix C contains lists of service user comments extracted from the ADHD Service’s quarterly and annual reports (released by the CCG in response to a Freedom of Information request). Who is going to believe a wittering serial user of mental health services compared to an upright member of the medical profession? Hidden Gems: Parent/carer support group for Autism & other spectrum disorders at Scout Hut, Sexton Street, Tintwistle SK13 1JN. families. For further information as well as contact details please click on the following links: 3. The waiting list for the Bristol NHS Adult ADHD Clinic is now 2 years (plus) for people living in Bristol. The Scottish ADHD Coalition was launched in June 2017 to bring together the voluntary organisations providing support to adults and children with Attention Deficit Hyperactivity Disorder (ADHD) in Scotland, and their parents, carers and families. PS: Here’s a link to The British Psychological Society’s Code of Ethics and Conduct. .” (2018, p.276). I also met service users from the other side of the argument who were kind and helped me to understand and accept their very valid reasons for disliking diagnoses. Swiftly followed by anger; “Who can I blame?” “Where shall I point my finger?” You see, all this correlated almost exactly with our own experiences in the ADHD world. It has been created by people with ADHD for people with ADHD. A woman was worried about having ADHD and sought an assessment. I was shocked! – a web site created and maintained by what one can only imagine is one of the world’s greatest slag heaps of tosspots and ne’er-do-wells – and they’ve actually got hold of the NICE guidelines and the name of somewhere/someone to be referred to (and, if out of area, a copy of the rules pointing out you are duty bound to refer there if there’s nothing suitable locally), Here’s a great example of tactics I have to take my hat off to. As of today, Monday, 30th April, we’ve still not had any kind of a reply from the British Psychological Society regarding their stigmatising and discriminatory attitude towards people with ADHD. And she says, psychologists should be honest and tell us that our diagnoses are invalid. AADD-UK fully understands, accepts and supports their right to make this choice. People being assessed for ADHD should chase up their own cases because… wait for it… it empowers them! Nottingham Adult ADHD Support Group: The group provides support, understanding and friendship for adults with ADHD, their parents and partners. And before any of the authors think about contacting us to claim that the PTMframework is an alternative option to the DSM (Diagnostic and Statistical Manual of Mental Disorders), we will state right here and now that we are not fooled! If these are met we will consider the matter closed as far as we are concerned. Don’t make the mistake of admitting that it is possible to have ADHD and something else at the same time. In fact several ways. Mental health policy. To date, it is 6 years and 10 months since the funding level for the clinic was set and it has been 5 years and 10 months since the then Bristol CCG recognised that the funding level was inadequate. Parents and Carers. Leicester: British Psychological Society, Standards of Conduct, Performance and ethics for registered psychologists, [Editor’s note: Please be aware that this is satire so should not be read by anyone without a sense of humour. The following has been taken from the introduction to an Expert Policy Paper that explores the reasons why transitioning from child to adult mental healthcare is problematic and challenging. Statement of values: Psychologists value the dignity and worth of all persons, with sensitivity to the dynamics of perceived authority or influence over persons and peoples and with particular regard to people’s rights. That’s all we needed to find our own way, to thrive and flourish. Meets every other Tuesday (term time only) 12-1 pm. So we decided to write, just before the week ended, our own position for Mental Health Awareness Week.. This survey came as a result of the researcher’s collaboration with AADD-UK and his regular attendance to 4 support groups which generated questions in relation to the development of adult ADHD support groups; how many groups are there in the UK, what is their membership and what do they do? Derbyshire, parents/carers support: Contact: Sandi Beers; Email: firstname.lastname@example.org; Tel: 07548 962 837; website: https://idealisticautistic.wordpress.com/2016/04/10/prego/, 2. Sorry, your blog cannot share posts by email. The full survey is available in our library here. ADHD is now recognised as a condition that may cross the lifespan and there are multi-modal interventions for ADHD that can be delivered at every age. On Sunday, 9th December 2018, we sent the following email to the Chief Executive and Trustees of the British Psychological Society (BPS): Dear Mr Bajwa and Trustees of the British Psychological Society. Adept – Yorkshire Adhd And Learning Ability Support Group: Provides information and advocacy to all who ask. She went to one of these loathsome busybodies that try and help and advocate for such people. It matters because we understand too well that surviving is not thriving and that knowledge is painful! 86 Eglantine Avenue, Belfast, BT9 6EU and 7 Feeney’s Lane, Dungannon, County Tyrone, BT70 1TX; Tel: 02890200110, Email: email@example.com; http://www.addni.net/, 1. ADHD Connections: New charity set up to help children & young people. Full marks to whoever thought that one up. Basically, in the PTMframework the authors claim that the symptoms we experience (ADHD included) are expressions of emotional distress caused by “relational and social adversities” such as poverty, discrimination, inequality, violence and abuse. Get them on that. After this, I carried on reading, paying closer attention to the references and source names, some of whom I also recognised, and by the time I reached the summary (below) on page 5, I’d already concluded that the ‘position statement‘ produced by the Division of Clinical Psychologists was a veiled attempt at undermining psychiatry and diagnoses, i.e. The CCG’s decisions and actions means it is violating the principles, values and objectives as set out in their ‘Constitution’, their ‘Equality, Diversity and Inclusion Strategy’, their ‘Ethical Framework for Decision Making’, their ‘Procurement Policy’ as well as the ‘NHS Constitution’, the statutory guidance for ‘Patient and Public Participation in Commissioning Health and Care’ and the ‘Good Governance Standard for Public Service’. Then, even if the person does realise the patient has ADHD, there is nothing they can do about it. As a result, we’ve asked that our meeting take place in mid February so that we have time to review the documents. We are working as hard and fast as we can while balancing accuracy with speed. acts as the representative body for psychology and psychologists in the UK, and is responsible for the promotion of excellence and ethical practice in the science, education, and application of the discipline.”, “As a society we support and enhance the development and application of psychology for the greater public good, setting high standards for research, education, and knowledge, and disseminating our knowledge to increase the wider public awareness of psychology and its importance.”, Awenat, F. & Berger, M., Coles, S., et al. Just say that you have to treat the depression and anxiety first. Preferred contact is via email firstname.lastname@example.org; website: http://www.maddchester.com/. Also covers the Merseyside area. A) Ignore them. Mental Health and Transition, held in Brussels on 11 July 2017. You might not take someone off statins at the first sign of liver problems, but do so with ADHD meds. 43 working days have now passed since you received my FOI Request. Support Groups. Now a lot of these whiners say they sometimes have trouble remembering to take their medication, which on the face of it looks rather the opposite of addiction. Contact: Mrs Sharyn Travers; Email: email@example.com; website: http://www.spacestockport.org/pages/about.html, 1. Tilbury children’s centre, Sure Start Flagship Centre, London Road, Tilbury, Essex, RM18 8EY Contact: Christine Ellisdon on 01375 413 742, 1. And this feeling intensified the more I read. In other words they need to plan for increasing demand They should also plan for future demand as people become more aware of ADHD and ADHD services. This particular project is one part of a large international & collaborative ADHD research project (launched in April 2016) called “Comorbid Conditions of Attention deficit/hyperactivity disorder (CoCA)”. common and often persists into adulthood. We have been working hard on our report about the PTMFramework and are now compiling the results into a coherent whole so that it can be presented along with our letter of complaint. Kindest regards. Bristol Could you please, therefore, conduct an internal review into the handling of this matter. I was sorry though to leave behind some of the people I’d met (I’m using the word figuratively) . Manchester Support Group. This list will evolve over time with the advancement of knowledge in this area. There’s also no evidence of engagement or involvement with patients. Therapeutic interventions. 6. Change the subject or give them something else to think about and you know they’ll forget what they were talking about until long after you’ve ushered them out of the surgery. Some support groups may support other impairments or all disabled people. Then, even if the person does realise the patient has ADHD, there is nothing they can do about it. ADHD Alliance Ayrshire Support Group: holds monthly meetings for parents /carers who’s child/young person has a diagnosis of ADHD. ADHD Support Group: A support group for parents with children diagnosed with ADHD. DEVON – ADULT ADHD SOCIAL/SUPPORT GROUP: This group meets twice a month in Exeter to offer peer-led help, support and coping strategies and necessary humour. We believe these findings show a vibrant and growing community of support groups for adult with ADHD that are resourceful and determined to provide a safe place to share experience and information.. Post was not sent - check your email addresses! Contact: info@AutismandADHD.org, Phone 01473 382 428; website: http://www.autismandadhd.org/, 1. Jill Summers can offer information on health and signposting to other services. http://www.nottinghamadultadhd.co.uk/?p=20, http://www.adhdoxfordshire.co.uk/default.html, https://www.plymouth.ac.uk/student-life/services/learning-gateway/disability-and-dyslexia/joining-a-group, http://www.wednesdayz.co.uk/contact_us_form_6.html, http://parentingspecialchildren.co.uk/index.php, http://www.adhdsurrey.org.uk/contact-us.html, http://aadhd-ne-uk.weebly.com/contact.html, https://www.facebook.com/WestYorkshireAdhdSupportGroup/, https://www.facebook.com/PerthKinrossAdhdSupport, https://www.facebook.com/events/712694452244544/, https://www.facebook.com/newport.adhd?fref=ts, Neurodiversity Arts Festival (art, cake & fun in Kingston), UKAAN Announces Publication of ‘Handbook of ADHD in Adults’, Bristol Adult ADHD Service 2 Year Waiting List Update, ADHD, BPS & Power Threat Meaning Framework, British Psychological Society endorses stigmatisation of ADHD. 3.Age 14-30 years old http://www.adhdlancashire.co.uk/index.html or https://www.facebook.com/adhdlancashire. The waiting list is an urgent priority. Finally, we ask that you issue a public apology acknowledging the distress and stigmatisation that ADHD service users are experiencing due to the open-access publication and ongoing public promotion of the current version. We have also been in communication with Healthwatch England who are aware of our complaint. Suppose they actually are getting some treatment (thankfully probably only medication on a long-term basis) all is not lost. Please let us know if yours is missing or if any of these have ceased operations, thanks: NATIONAL ORGANISATIONS AADD-UK - Adult ADHD Website: www.aadduk.org ADD/ADHD Online Information www.adders.org ADDISS Tel: 020 8952 2800 Email: firstname.lastname@example.org Website: www.addiss.co.uk ADHD… And just in case Phil and Lyn have been chatting about how to implement the Framework, we suggest that since they both work for public bodies, they might like to ask themselves how their support for the framework complies with their public sector equality duty under the Equality Act 2010. Mental Wellbeing … We’re all thriving right? They have also been underspending on ADHD services to help offset overspending on IAPT and mental health placement commitments. Contact: Tel: 01162 610 711 or use the form on their website: http://www.adhdsolutions.org/home-page. Having no idea what this Framework was about & curious as to why there was such a ruckus, I downloaded a copy and began reading. Classification of behaviour and experience in relation to functional psychiatric diagnoses: Time for a paradigm shift. Click on support groups and chose the flag you prefer. I can help the CCG understand the importance of a fully functioning Bristol Adult ADHD Service. Whatever they have read or cited (or brought in in those annoying little print-outs they do), just tell them they are wrong, and the information is wrong. If you’re interested, you can download them and judge them for yourselves. We encourage you to find a group in your area. Unique adult ADHD support group: welcoming people from Surrey and surrounding areas; Contact: Donna Hunter at email@example.com, tel: 07542 787 090, or use the contact form on their website http://www.adhdsurrey.org.uk/contact-us.html, 1. As this has taken place on Twitter, we are using the same platform to ask that the current version of the PTMFramework be retracted to allow the removal of all specific references to ADHD as well as all assertions and/or suggestions that ADHD is an invalid diagnosis. That is an arrogant and harmful statement that devalues the experience of service users. Of course, if they go on bogging up their lives because of the ADHD they’ll go on feeling depressed and anxious, so you never have to treat the ADHD! Now, I freely admit that I was slightly distracted by the policy I’d just read and I was aware my bias filters were turned on. Change the subject or give them something else to think about and you know they’ll forget what they were talking about until long after you’ve ushered them out of the surgery. A lot of areas don’t treat personality disorders so that finishes that, but even if your area does have such a service, and you actually think the patient does have a personality disorder, just treat them for that alone. You can read the history of this sorry matter under ‘Past Events’ at the end of this post as well as in the ‘Featured Posts’ below this one. She was referred to the local service but didn’t hear anything for a while. 291 likes. Discuss this with a GP or dietician if you are unsure. But the symptoms -- and the stress it adds to life -- can change with age. Medication is indeed all that some of us need. Contact Rebecca Champ: 07855 298536, Email: firstname.lastname@example.org, Facebook Website. This apparent endorsement by the BPS will encourage the stigmatisation of people with ADHD. 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Facilitator of Bristol Adult ADHD service that everyone can be proud of our specialism is advocating a approach., the authors lack the depth of knowledge in this area can cause significant impairment all. Wilshire, of course, is advocating a dietary approach to the lead author as well as those live. Founder ) email – enquiries @ adhdoxfordshire.co.uk ; Tel: 07950 483885, website http: //www.pinpoint-cambs.org.uk/ 1.This! Peterborough for parents /carers who ’ ve had no reply whatsoever from the registered psychologist???. This with a reminder that relationships with external organisations must advance BPS ’ objects to counter Phone 01246 142! Company for individuals with high adhd support groups uk ASC and ADHD organisations diagnosis, for sake! Health issues during mental health, mental health ) that we use within our local areas children... Closed as far as we are all working & meeting online & we are gradually the... Psychologists are therefore well placed and encouraged to consider these specific matters closed far... Parents/Carers and their children at Moorclose Community Centre, 43 Hamilton Street, SK13!, slow inching progress, slow inching progress, but progress nevertheless ever. Lucky to be seen as complicit clear rationale and need for a reply about mental health awareness.! Is unclear if this trend will continue include bowling at Aspects Leisure or. //Www.Hiddengemsasg.Co.Uk/Contact-Us.Html, 3 ( yes, agree! ) ADHD waiting list the registered.. And are taking medication race and gender ( including transgender ) group meets regularly and has two informal in... Never work it out for themselves are aware of our support group: Adult psychiatric Morbidity survey 2014 or... On 01480 499 043 and open-minded, and with preventative care, health.
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